Mimie Mathy : la maladie rare et complexe dont elle souffre

Atteinte d’une maladie rare et complexe depuis son plus jeune âge, Mimie Mathy n’a jamais baissé les bras.


LA MALADIE DONT ELLE SOUFFRE DEPUIS L’ÂGE D’UN AN


Mais depuis l’âge de 12 mois, son quotidien est rythmé par une maladie qui explique sa petite taille et qui cause d’autres désagréments. En effet, depuis son plus jeune âge, Mimie Mathy est atteinte d’achondroplasie.

Mimie Mathy au festival du film d’Angoulême le 26 août 2016.
« Quand j’ai eu un an, on s’est rendu compte qu’il y avait un truc qui n’allait pas.

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Dwarfism Awareness Month is now almost over. While we didn't post as much as we planned to, we thank you for all following along as we re-told part of our story. Dwarfism Awareness has changed for me over time. I have gone from thinking that it's my job to tell people what NOT to do or say to someone with dwarfism to now spreading awareness of the value of people who are "different." So when you see children like Brody, more than anything else, I hope that you see what we see. I hope that you see a happy little boy. I hope that you see a child who has overcome great obstacles in his three years. I hope that you see a child with no limits. I hope you see a boy who loves deeply and sees the best in the world. I hope you see a child who was made perfect by Almighty God. We have a tendency to judge people's worth based on what we see on the outside. Many focus on what Brody cannot do rather than what he's capable of. Children and families of children with disabilities are commonly pitied and felt sorry for. Do not feel sorry for these people or us. Through these incredible children, many of these parents, grandparents, siblings and cousins have been given a unique perspective on what really matters and have learned to love as Christ loves us: unconditionally, without judgement, and without finding fault or drawing comparison to others. We hope that through our story that you find hope if you have been given the same diagnosis that we once received. We hope through our story that you realize that life is about the journey you have before you, not someone else's. We hope that through our story you will find beauty and worth in the many different uniquenesses, colors, orientations, beliefs, and sizes of people. We hope through our story that the world will learn to see past the differences in each other to find the common bond that unites us all. We hope through our story that you realize that you too have something great to offer the world. And, above all, we hope that you will be motivated to tell your own story to be a light to someone else in need.

Une publication partagée par Mike and Marcella Stanley (@brodysbigadventure) le


QU’EST-CE QUE L’ACHONDROPLASIE ?
L’achondroplasie est une maladie constitutionnelle des os, provoquant un nanisme avec un raccourcissement de la racine des membres. Malgré un impact considérable sur le physique, elle ne touche pourtant pas les capacités cognitives des personnes qui en sont touchées.


UN ENFANT ATTEINT DU NANISME QUI A DÉFIÉ TOUS LES PRONOSTICS
Alors que selon certains médecins tout était contre lui,  Brody a réussi à grandir  et à devenir un petit garçon exemplaire. Un médecin a fait preuve de très peu de tact en s’adressant à un couple qui allait avoir son premier enfant.

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